Health project partner
Example roles/ organisations
Research centre partnership coordinators
Patient organisations
Health tech leads
Responsibilities in health data governance
Collects and acquires data for research, insights and other purposes
Calculates cost-benefit analysis and return on investment from access, use and sharing of data
Ensures ethical and legal collection, use and sharing of data to avoid harmful impacts
Why data governance matters to them
Data governance will support:
the creation of new products and services
analysis, insights and decisions informed by data
the sharing and reuse of data for research or other uses, while complying with regulations
Key relationships that these stakeholders need to form and manage
Health project partners sometimes report to ethics boards, both internally or industry-wide, on how they collect and share data (eg clinical trial data). They must liaise with potential data users, patient organisations or data subjects to build relationships that enable data sharing and meet compliance requirements.
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