Resources relating to this play

Within the playbook:

• Managing risks when handling personal data

• Assessing the legal, regulatory and policy context for sharing health data

• Sharing health data: data agreements and technologies

Other resources:

• This ODI guidebook on trustworthy data stewardship.

• The NYU GovLab data responsibility journey outlines key questions to ask when preparing for data sharing and lists resources for further reading and consideration of data sharing best practices.

• A report by the Support Center for Data Sharing describes a range of model data sharing agreements that can be customised for a specific use case.

• A guide developed by Protection Information Management (PIM) has frameworks and lists key considerations for managing data sharing agreements.

• A health information and data sharing resource from the Health Network for Public Health Law describes US examples of data sharing projects.

• Resources from the Camden Coalition of healthcare providers with cross-sector data sharing agreements can be used by local governments when sharing data with other agencies.

• Sharing is caring is a paper that describes a range of global data sharing initiatives and their successes to date.

• Responsible data sharing in international health research: a systematic review of principles and norms is a paper that describes best practices in health data sharing.