Governmental body

Example roles/ organisations

  • Department of Health

  • Regional/local health agencies

  • Digital government agencies

Responsibilities in health data governance

  • Makes decisions informed by health data

  • Facilitates cross-border relationships for data access, use and sharing

  • Oversees data governance frameworks at a regional or national level

  • Oversees accountability mechanisms that create the conditions for trustworthy data collection, access, use and sharing

  • Facilitates multi-stakeholder data governance networks to create value from data use

  • Communicates the value of data governance and data use to all stakeholders (building a trustworthy data infrastructure that protects personal data)

Why data governance matters to them

Data governance will support:

  • defining data-informed health outcomes and key challenges by using quality data that is timely and comparable

  • the ability to analyse data by who faces the greatest health burdens, in order to plan equity-based solutions

  • innovation with health data that is ethical, equitable and minimises harmful impacts for individuals or communities

Key relationships that these stakeholders need to form and manage

Governmental bodies must work with policy leaders to ensure that regulations and policy approaches, such as incubator funding, are in place to encourage innovation from reuse of data, while protecting the privacy of individuals and avoiding harmful impacts on individuals and communities. They must communicate to the wider non-technical community on the need to build trustworthy health data ecosystems for better healthcare outcomes.

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